Welcome!

Hey there, family! Welcome to Sloan's blog.  We wanted to have a place to share Sloan's progress and provide information on children born with congenital heart disease, specifically Tetralogy of Fallot.  Please follow along for all of Sloan's updates.  We thank you for your thoughts and well wishes. We hope for a speedy recovery and that you get to meet him soon! 

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Monday, January 18, 2021 - Sloan's Emergency Heart Surgery

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On Monday morning, January 18, 2021, the Medical City Children's Congenital Intensive Care Unit team, which consisted of congenital heart surgeons, pediatric cardiac intensivists, pediatric heart nurse, pediatric perfusionists, pediatric anesthesiologists, and pediatric cardiologists, met to evaluate Sloan's case.  They discussed all the options and possible outcomes, and then decided the best option for Sloan based on his current situation. After the CICU team met, Dr Brenes (congential heart surgeon), Casey (congenital heart surgery nurse practitioner), and Dr. Manzuri (pediatric cardiac intensivist) came to Sloan's room to give Mama and Pop the game plan...Sloan would have surgery in the afternoon to place a Blalock-Taussig (BT) shunt in his heart.  Sloan's condition was not improving even with all the medical interventions they gave him in the last couple days, and his heart needed this shunt to create a pathway for blood to circulate to his lungs.   The surgery was
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Sunday, January 17, 2021 - Sloan's Progress in the CICU

1am-ish  Dr Das told Mama that even with the fluid, Sloan's oxygen levels are still decreasing. If this continues, Sloan will need more Precedex to relax him and get his heart rate down to the 110s. Sloan will also need another IV just in case because his veins are so small the IV inserted in the ER could go bad so they need a back up IV. Sloan will likely need a central line. The central line will be better to get blood for labs and meds into him since the IVs can go bad. He will also need an artery line to monitor his blood pressure. If his oxygen levels do not get better, they will need to intubate him and have a ventilator help him get the oxygen he needs.  Due to a possibility of infection, surgery would not be an option today, but there could be talk of Sloan having surgery later this week. Dr Das has Sloan on PGE to open the pulmonary duct. Hopefully this will help with the pulmonary flow, but it may affect his oxygen. 5am-ish  Looks like the PGE is helping with his stats st
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Thursday, January 7, 2021

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Hey everybody... I'm one week old!  This past week has flown by. My dirty diapers have been changing colors as expected and I've been peeing like crazy... Must be mama's delicious milk. I've been doing a lot of sleeping, eating and peeing lately. When I'm awake, I like to be held by Mama and Pop. I also just gaze around and check out my new home, go over my ABCs with pop or just snuggle up with Mama.  My first pediatrician visit went well. I didn't have jaundice and I'm gaining weight fast.  The pediatrician said that it's normal for my feet to be cold and that I may turn blue because I'm a Tet kiddo. This is me doing what I do best. Don't mind my milk mustache... I really love snuggling up to Mama. She has this cool fabric that lets her wear me like a kangaroo!  Here's pop feeding me some delicious food. I'm always hungry and I make sure to let my parents know.  Sometimes I get nakey when I eat because I tend to f
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